沈敏, 张抒扬. 北京协和医院罕见病医学科建科初探[J]. 罕见病研究, 2024, 3(2): 164-167. DOI: 10.12376/j.issn.2097-0501.2024.02.002
引用本文: 沈敏, 张抒扬. 北京协和医院罕见病医学科建科初探[J]. 罕见病研究, 2024, 3(2): 164-167. DOI: 10.12376/j.issn.2097-0501.2024.02.002
SHEN Min, ZHANG Shuyang. Preliminary Exploration on the Establishment of the Department of Rare Diseases at Peking Union Medical College Hospital[J]. Journal of Rare Diseases, 2024, 3(2): 164-167. DOI: 10.12376/j.issn.2097-0501.2024.02.002
Citation: SHEN Min, ZHANG Shuyang. Preliminary Exploration on the Establishment of the Department of Rare Diseases at Peking Union Medical College Hospital[J]. Journal of Rare Diseases, 2024, 3(2): 164-167. DOI: 10.12376/j.issn.2097-0501.2024.02.002

北京协和医院罕见病医学科建科初探

Preliminary Exploration on the Establishment of the Department of Rare Diseases at Peking Union Medical College Hospital

  • 摘要: 北京协和医院成立罕见病医学科是罕见病学科发展的重要事件。罕见病医学科的建立将进一步发挥北京协和医院在罕见病领域的突出影响力和“诊-疗-研”领先优势,助力医院高质量发展,更好地造福罕见病患者和助力罕见病专科人才培养,推进中国罕见病防治事业发展。本文对北京协和医院罕见病医学科建科的工作基础、意义及学科发展规划进行初步探讨。

     

    Abstract: The establishment of the Department of Rare Diseases at Peking Union Medical College Hospital (PUMCH) is a landmark in the disciplinary development of the rare diseases. The establishment of the department will booster the prominence of the influence and leading position of the PUMCH in the field of rare diseases. In addition, the department is instrumental in the development of the hospital of high-quality. The department aims at delivery of better medical care for patients with rare diseases, the training of specialists in rare diseases, and avancement of the preventing and treating rare diseases in China.This paper preliminarily discusses the working basis, significance and discipline development plan of the department of rare diseases at PUMCH.

     

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