徐溢明, 彭慧明, 吕帅洁, 童培建, 李虎, 陈奋勇, 王海彬, 杨琪, 陈滨, 袁振, 毕荣修, 冯建民, 姜文学, 周宗科, 范猛, 李想, 雷光华, 翁习生. 中国大陆地区17家三甲综合医院血友病性骨关节病外科治疗现状调查[J]. 罕见病研究, 2023, 2(4): 516-522. DOI: 10.12376/j.issn.2097-0501.2023.04.008
引用本文: 徐溢明, 彭慧明, 吕帅洁, 童培建, 李虎, 陈奋勇, 王海彬, 杨琪, 陈滨, 袁振, 毕荣修, 冯建民, 姜文学, 周宗科, 范猛, 李想, 雷光华, 翁习生. 中国大陆地区17家三甲综合医院血友病性骨关节病外科治疗现状调查[J]. 罕见病研究, 2023, 2(4): 516-522. DOI: 10.12376/j.issn.2097-0501.2023.04.008
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XU Yiming, PENG Huiming, LYU Shuaijie, TONG Peijian, LI Hu, CHEN Fenyong, WANG Haibin, YANG Qi, CHEN Bin, YUAN Zhen, BI Rongxiu, FENG Jianmin, JIANG Wenxue, ZHOU Zongke, FAN Meng, LI Xiang, LEI Guanghua, WENG Xisheng. A Survey of the Current Status of Surgical Treatment of Hemophilic Osteoarthropathy in China Mainland 17 Grade A General Hospitals[J]. Journal of Rare Diseases, 2023, 2(4): 516-522. DOI: 10.12376/j.issn.2097-0501.2023.04.008
Citation: XU Yiming, PENG Huiming, LYU Shuaijie, TONG Peijian, LI Hu, CHEN Fenyong, WANG Haibin, YANG Qi, CHEN Bin, YUAN Zhen, BI Rongxiu, FENG Jianmin, JIANG Wenxue, ZHOU Zongke, FAN Meng, LI Xiang, LEI Guanghua, WENG Xisheng. A Survey of the Current Status of Surgical Treatment of Hemophilic Osteoarthropathy in China Mainland 17 Grade A General Hospitals[J]. Journal of Rare Diseases, 2023, 2(4): 516-522. DOI: 10.12376/j.issn.2097-0501.2023.04.008
shu

中国大陆地区17家三甲综合医院血友病性骨关节病外科治疗现状调查

A Survey of the Current Status of Surgical Treatment of Hemophilic Osteoarthropathy in China Mainland 17 Grade A General Hospitals

    摘要
  • 摘要:
      目的  了解中国血友病性骨关节病外科治疗的现状。
      方法  采用方便抽样调查、在线问卷形式，选取参加《中国血友病骨科手术围术期管理指南》、中国血友病协作组、全国关节外科学组成员单位及中华医学会骨科分会成员医院，对各参与调查单位自开始进行血友病性骨关节病以来的手术情况进行调查分析。
      结果  共纳入国内17家医院，均为综合性医院。2000年前开展血友病性骨关节病手术的医院占35.29%。各医院共报告3057例血友病性骨关节病外科手术。开展最多的术式为膝、髋关节置换术。选用最多的凝血因子替代方案为重组凝血因子制剂。有10家医院报告发现患者合并有输血相关传染病。出血和血肿形成是被报告最多的手术并发症。住院康复时间过长和经济花费过高是被报告最多的问题。
      结论  相比患者基数，17家医院中血友病性骨关节病的外科手术普及情况和开展数量仍相对不足，需要从规范因子替代、加强康复等方面进一步加强治疗体系规范化建设，改善手术治疗效果。

     

    Abstract:
      Objective  To understand the current status of surgical treatment for hemophilia osteoarthropathy (HO) in China.
      Methods  Using an online questionnaire, select domestic hospitals that partici-pated in the compilation of the 'Guideline for perioperative management of hemophilia patients undergoing orthopaedic surgery in China ', in addition to members of the National Joint Surgery Group, and the Orthopedic Branch of the Chinese Medical Association for targeted investigation and analysis.
      Results  A total of 17 domestic hospitals were included, all of which were general hospitals. Hospitals that started HO surgery treatment before 2000 accounted for 35.29%. A total of 3057 surgical cases of HO were reported by those hospitals. The most commonly performed surgical procedures were hip and knee joint replacement. The most commonly used coagulation factor replacement regimen was recombinant coagulation factor preparation. Ten hospitals reported finding patients with transfusion-related infectious diseases. Bleeding and hematoma formation were the most frequently reported surgical complications. Excessive length of hospital stay and high economic costs were the most frequently reported problems.
      Conclusions  Surgical treatment for HO in 17 hospitals is mainly carried out in some large comprehensive medical centers in the eastern region. Compared with the patient base, the popularity and number of surgeries are still relatively insufficient. It is necessary to further standardize the treatment system by standardizing factor replacement and strengthening rehabilitation to improve surgical treatment outcomes.

     

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