陶立波, 王芳旭, 贾方红, 杨玉琳, 郑佳音, 张抒扬. 中国罕见病多元保障体系建设的分析与探讨[J]. 罕见病研究, 2023, 2(1): 135-142. DOI: 10.12376/j.issn.2097-0501.2023.01.019
引用本文: 陶立波, 王芳旭, 贾方红, 杨玉琳, 郑佳音, 张抒扬. 中国罕见病多元保障体系建设的分析与探讨[J]. 罕见病研究, 2023, 2(1): 135-142. DOI: 10.12376/j.issn.2097-0501.2023.01.019
TAO Libo, WANG Fangxu, JIA Fanghong, YANG Yulin, ZHENG Jiayin, ZHANG Shuyang. The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China[J]. Journal of Rare Diseases, 2023, 2(1): 135-142. DOI: 10.12376/j.issn.2097-0501.2023.01.019
Citation: TAO Libo, WANG Fangxu, JIA Fanghong, YANG Yulin, ZHENG Jiayin, ZHANG Shuyang. The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China[J]. Journal of Rare Diseases, 2023, 2(1): 135-142. DOI: 10.12376/j.issn.2097-0501.2023.01.019

中国罕见病多元保障体系建设的分析与探讨

The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China

  • 摘要: 罕见病医疗保障工作日益受到社会各界的关注。本研究通过文献综述、专家访谈、试点政策总结等研究方法,对中国罕见病多元保障体系的建设进行了深入分析。研究认为,以国家基本医疗保险为基石建立多元保障体系是完善中国罕见病医疗保障的重要途径,对于暂不能纳入国家医疗保险的罕见病医疗医药产品则应建立罕见病专项保障机制予以保障,同时结合救助和慈善机制对经济状况较差的罕见病患者进行兜底纾困。通过建立多元化保障机制,以期完善中国罕见病的医疗保障体系。

     

    Abstract: Health security for rare diseases has aroused much attention in the society nowadays, In this article, we analyzed in-depth the construction of rare diseases health security in China by studying the literature reviews, expert interviews, and reports of pilot policy investigations. We conclude in the study that it is an important step to constructing a multiple health security system for the rare disease making the basic health security as the cornerstone. For rare medications and treatments that cannot be covered by the current national health insurance, it is necessary to build an specific funding for rare disease funding as a means of safeguard. Finally, for those who are financially disadvantages, the system should involve relief and philanthropy to help them. By constructing a multiple health security system, rare diseases patients in our country will get a well-covered health care.

     

/

返回文章
返回