叶昌雄, 孙竞. 血友病救助资金“一站式结算”服务的发展和应用[J]. 罕见病研究, 2022, 1(4): 474-478. DOI: 10.12376/j.issn.2097-0501.2022.04.019
引用本文: 叶昌雄, 孙竞. 血友病救助资金“一站式结算”服务的发展和应用[J]. 罕见病研究, 2022, 1(4): 474-478. DOI: 10.12376/j.issn.2097-0501.2022.04.019
YE Changxiong, SUN Jing. Development and Utilization of "One-Stop Finance Service" forRelief Fund for Hemophilia Patients[J]. Journal of Rare Diseases, 2022, 1(4): 474-478. DOI: 10.12376/j.issn.2097-0501.2022.04.019
Citation: YE Changxiong, SUN Jing. Development and Utilization of "One-Stop Finance Service" forRelief Fund for Hemophilia Patients[J]. Journal of Rare Diseases, 2022, 1(4): 474-478. DOI: 10.12376/j.issn.2097-0501.2022.04.019

血友病救助资金“一站式结算”服务的发展和应用

Development and Utilization of "One-Stop Finance Service" forRelief Fund for Hemophilia Patients

  • 摘要: 血友病患者用药经济负担重,慈善捐赠是重要的救助资金补充手段。为探索合理、高效地应用救助资金,南方医院较早开展了救助资金“一站式结算”服务。其做法、经验被广泛参照应用,取得了较好的效果。本文综述近年来国内血友病救助资金“一站式结算”服务相关情况,探讨其在血友病救助中减轻患者负担、提高救助效率的意义。

     

    Abstract: The economic burden of medication for hemophilia patients is heavy. Charitable donation is a key way to supplement relief funds for the patients. In order to explore the appropriate and efficient usage of the relief funds, Nanfang Hospital was one of the earliest ones that launched the "one-stop finance service" of relief funds. The practice and experience of the service have been widely referred to and applied in other places, and achieved good results. This article reviews the practice and cases, and discusses the significance in reducing the burden of patients and in improving the efficiency of hemophilia relief.

     

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