中国血友病协作组, 中国罕见病联盟血友病学组. 中国血友病骨骼肌肉并发症康复评估与治疗专家共识[J]. 罕见病研究, 2022, 1(4): 420-427. DOI: 10.12376/j.issn.2097-0501.2022.04.010
引用本文: 中国血友病协作组, 中国罕见病联盟血友病学组. 中国血友病骨骼肌肉并发症康复评估与治疗专家共识[J]. 罕见病研究, 2022, 1(4): 420-427. DOI: 10.12376/j.issn.2097-0501.2022.04.010
Hemophilia Treatment Center Collaborative Network of China, China Alliance for Rare Diseases, Hemophilia Subcommittee. Expert Consensus on Assessment for Rehabilitation and Treatment of Musculoskeletal Complications of Hemophilia in China[J]. Journal of Rare Diseases, 2022, 1(4): 420-427. DOI: 10.12376/j.issn.2097-0501.2022.04.010
Citation: Hemophilia Treatment Center Collaborative Network of China, China Alliance for Rare Diseases, Hemophilia Subcommittee. Expert Consensus on Assessment for Rehabilitation and Treatment of Musculoskeletal Complications of Hemophilia in China[J]. Journal of Rare Diseases, 2022, 1(4): 420-427. DOI: 10.12376/j.issn.2097-0501.2022.04.010

中国血友病骨骼肌肉并发症康复评估与治疗专家共识

Expert Consensus on Assessment for Rehabilitation and Treatment of Musculoskeletal Complications of Hemophilia in China

  • 摘要: 血友病是一组遗传性出血性疾病,骨骼肌肉出血是最常见表现,是患者致残的重要原因,康复医学在血友病综合管理中发挥了重要的作用,近年来,国内对血友病患者康复评估和治疗的研究增多。基于目前的循证医学证据,多学科领域专家在血友病骨骼肌肉并发症康复评估与治疗方面达成一致共识,为临床规范化诊疗提供了重要依据。

     

    Abstract: Hemophilia is a group of hereditary hemorrhagic diseases. Hemorrhages mostly occur in musculoskeletal system and is the main cause for disability. Rehabilitation plays an important role in the comprehensive management in hemophilia. In recent years, researches on rehabilitative assessment and treatment of hemophilia have made a lot of progress in China. Using evidence-based method, experts from different disciplines have reached a consensus on the rehabilitation assessment and treatment of hemophilia skeletal muscle complications, providing an important reference to the clinical practice.

     

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